Mini-Review: M in the Middle

M.

When I reviewed the book M is for Autism, I said I wanted to hear more about this girl who calls herself “M.”  I lost my copy of the book, and when I went on Amazon to buy a new one I discovered the students and their teacher had written a sequel.  I was hand-flapping excited (though I tried to tone that down when I told Mom I ordered them).

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Both books arrived yesterday, and I was so startled by M in the Middle‘s thicker size that for a moment I thought they sent the wrong book.  But no, it’s a longer novel.  I missed the colorful pages of M is for Autism, but they occasionally play with the fonts and type to help M communicate.

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This is what happens when you have autistic girls write a novel about an autistic girl.

 

I re-read M is for Autism last night to prepare for the sequel.  I was a little surprised by *just* how short it is; I think that I was so engrossed in the scenes and M’s mind when I first read it that it felt “bigger.”  I loved it just as much the second time.

I was impressed by the consistency of the character and her voice between the two books.  Our main character and narrator is now in year 8 in England (7th grade, here in the States).  She got her autism diagnosis a year ago, and her wonderful therapist has been helping her understand herself and develop strategies for dealing with her often-crippling anxiety.

I do want to caution those of you who struggle(d) with anxiety.  The authors do an incredible job of provoking empathy for their anxious narrator.  Pretty much any time M was taking deep breaths or using another calming strategy, I found myself taking deep breaths along with her.  I read the book in one day – partly because it was so good, and partly because I didn’t want to drag out my time living in her anxious mind.

We get a fuller picture of M’s life in this longer book.  She deals with INCREDIBLY frustrating adults who do pretty much the opposite of what this poor girl needs, fueling her anxiety and pushing her towards mutism.  She encounters a few people who get her, show her kindness, and help her find her voice again.  She has “friends” who turn into horrible bullies and she has friends.  She has an obsessive crush on an older boy, and wonders if she can have a “normal” future.  She tries so hard to fit in.  She tries so hard to have friends.  She tries so hard to do the right things at school.  She tries so hard to combat her anxiety.  She tries so hard to connect with her family while recognizing she can’t do the things they want her to do to show that connection.  She tries. So. Damn. Hard.

While 13-year-old me didn’t have all the same struggles and experiences, I related to a lot of what she goes through.

Again, the authors share some truly insightful thoughts through M’s words.  Here are a few I made note of as I read.

About her mother (p. 113):

She was delighted when we got the diagnosis. She was reading books and web pages and talked about us going to meetings and then she just seemed to stop.  Like she stopped believing I had autism or maybe when the reality of it began to unfold it all became too difficult.  . . .

But I’ve been carrying it around with me my whole life.  This is my reality, and does she realise how difficult that is?

About trying to “crack the friendship code” (p. 115):

And even though the truth is I love being on my own, I feel a desire to fit in and have friends.  Like it’s part of my purpose on earth.  I’m hardwired to fit in!  . . . I want to be accepted by my fellow human beings, but it really is so much easier on my own, and I retreat back to my little pink room, back to the security of my bed and blanket and the comfort of Skylar, season 5, episode 7.

When her mother suggests she write down how she feels, to let her feelings “out into the world” (p. 169-170):

Is it like letting Bella out into the back garden?  I haven’t got a back door.  I can’t just open a door to me and let my feelings out into the world.  Is that what everyone else is doing? Am I surrounded by other people’s feelings that they’ve let out??  Do I pick them up as I pass someone in town or do other people’s anger or jealousy latch on to me as I walk down a corridor?  And is that why I get so anxious?  I’ve picked up all the dumped emotions everyone else has let out into the world and I have an extra quota of feelings?

While writing this, I recalled watching the video about the Limpsfield Grange School girls (where this book was written).  I just realized that one of the plot points (involving the crush’s photos) was inspired by a real experience of a girl at that school.

I strongly recommend this pair of books – for autistic girls to feel less alone, and for people who aren’t autistic girls to stretch their empathy muscles.  It’s an emotional ride, but they both end with glimmers of realistic hope.

Random Relationship Advice from a Clear Non-Expert

I recently read an article about the benefits of writing, and I decided I would spend some of my time off this Sunday writing down some thoughts.  Valentine’s Day is coming up, so the topic of relationships is looming large.  There are no romantic prospects on my horizon, but at least I’ve got my box and cards ready for the party at work.  (I’m gonna be the coolest 30-year-old in the 4th grade).

Ninja Turtle sewer box to hold my valentines

I was a Christian teenager in the 90’s, so my shelf is lined with the usual suspects – Passion and Purity, I Kissed Dating Goodbye, When God Writes Your Love Story, etc.  I’ve also been listening to the Boundless Show podcast a lot, which is geared towards Christian single young adults, so relationships are the most common topic of discussion.  In addition, I’ve read a few books specifically about Aspergers and relationships, like Asperger Syndrome and Long-Term Relationships, The Journal of Best Practices, and 22 Things a Woman with Asperger’s Syndrome Wants Her Partner to Know.  But most of what I’m sharing here I’ve learned the hard way.

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“No man is an island” – and a couple shouldn’t be, either.

Like a lot of Aspie girls, my dating life began atypically late.  When I had my first boyfriend in college, my best friend called me out on some stuff – but I wasn’t totally honest with her about the relationship.  It turns out that was really stupid, and I vowed to not make that mistake again.  I now have a team of trusted advisers that I consult in matters like this – my best friend (and her husband), my pastor and his wife, and my parents.  This caused some friction with one guy, because he didn’t like the fact that I was talking about our relationship with them, but I’m still very grateful that I did.  I don’t mean you should complain to everyone about your significant other – if you need some help discerning between seeking counsel and gossiping, check out my pastor’s book.  But it’s important to have people in your life who know you well and can look at a relationship more objectively than you can when you’re in the middle of it.  Choose them wisely.  You don’t have to do everything they advise, but you’ll be better off having them as part of the process.

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Communicate about what physical touch is okay.

When a guy nervously worked himself up to asking me if he could hold my hand, I thought it was silly/unnecessary. Yet I really appreciated that he respected me enough to ask about stuff like that (maybe he was just terrified, but still).  My first kiss had been stolen from me, and that taught me a lot about the need to discuss boundaries, because after that all the guy wanted to do when we were together was make out.  Which doesn’t *actually* help grow a strong, healthy relationship.  This topic is especially pertinent for people on the spectrum, for a few reasons.  One, we (generally speaking) have trouble reading the non-verbal communication that is a huge part of romantic interactions.  This makes it more difficult to know what the other person is thinking and wanting, unless they spell it out verbally.  Two, every individual is different when it comes to what kinds of touch we like and when, and sensitivity to touch can be a major issue for autistics.  Some individuals absolutely can’t stand light touch (the kind that is common in flirtatious interactions) to the point that it can make them feel panicked or physically ill.  Personally, I get kinda weirded out by light touch, especially if I don’t see it coming.  I also dislike hugging people I don’t strongly like (I’ve written before about how I used to run away or fight with relatives who tried to hug me when I was little).  Yet when I’m with someone I’m close to, I love physical contact – it’s actually one of my love languages.  It needs to be on my terms.

So respect others’ rights to their own bodies.  Find out about their sensitivities and what they’re comfortable with.  You don’t have to make it super awkward, but be polite and keep those lines of communication open.

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These two bunnies love to snuggle together.

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Emotional boundaries are just as important as physical ones.

What was that I said about learning things the hard way?  Ugh.  I really don’t have any specific, solid advice for this one.  It’s honestly hard to know how to build intimacy in an appropriate way, aside from saying take your time and don’t talk about certain emotional topics too soon.  It was a chapter in the book I Gave Dating a Chance that first introduced me to the topic of emotional intimacy, and I realized my good friend and I had crossed that line.  I won’t go into detail here, but I still haven’t fully recovered from the aftermath of that.  It resulted in one of the hardest times in my life (when I read the second Twilight book, I completely sobbed when Edward left Bella and there were those blank pages for each month, because I had lived that).

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Be honest.

This one should go without saying, but I’m talking about more than not lying.  It’s hard, because no two people are 100% compatible- there are going to be things we have to overlook or let go.  But we need to figure out which things really do bother us, and be honest about them.   At some point, if you try to ignore things, it won’t be pretty.  They’re going to add up and poison the relationship, or you’ll get in a fight about something unrelated and suddenly those myriad little annoyances will come spilling out.   I had a situation where I had said things were okay, but then I realized I was truly bothered by the low level of communication from a guy.  When I brought it up, it got him really upset, because I had previously said things were okay.  (Of course, it didn’t help that I sent a rather tactless e-mail instead of having a conversation about it, but that’s a topic for another day.)  This is why I bookmarked page 103 in Rudy Simone’s 22 Things a Woman with Asperger’s Syndrome Wants Her Partner to Know –

There’s also “alexithymia,” the inability to identify what one is feeling and therefore, not being able to express it or describe it in words.  If you tell her something that upsets her, she might not know it at first, or know why, so she might say, “Okay,” when in actuality, she doesn’t really feel okay . . .   We have a reputation for “saying what we mean and meaning what we say,” but if we don’t now what we are feeling at the time, we can’t.

Simone then brings up the topic of the spectrum “sixth sense,” and how we can tell something’s wrong even when someone isn’t telling us.  This is another reason I am bringing up the topic of honesty.  I’ve been in situations where I know something is up, even though I might not have hard “proof,” and I’m an emotional wreck wondering if I’m imagining things until finally I get the person to explain and confirm my suspicions.  Drag that kind of thing out long enough and you’re going to cause more hurt than if you had said something sooner. So be honest.

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I guess that’s it for today. A final random thought – when I look back at my relationships, I see that each one emphasized one area of connection above the others – spiritual, physical, emotional, intellectual.  It’s the spiritual connection I miss the most.